post by Tim Phillips
The production of instruments is still very much on the go, but to celebrate the New Year we had a small performance with four of the experimental instruments and a saxophone.Neither the sounds or picture quality are great, but there should be plenty of enthusiasm to keep you entertained. Please check it out, share it around.
We’re still collecting money and nearly at our goal of $5000, any help to get there appreciated: www.firstgiving.com/timjohnphillips
There is still a bigger exhibit/performance in the works featuring all the instruments – I’ll let you know when it’s coming… (these things take time).
Walking is one of the biggest conundrums with CMT, special devices called AFO's (Ankle Foot Orthotics) help solve it. Here’s a video a friend of mine made that does a great job in showing just what those AFO’s do. Thanks Geoff. (Tim)
CHARCOT MARIE TOOTH
post by Geoff the CMT drummer
